
My son Jack Marshall Smith died at 14 years of age from complications due to Lowe Syndrome in May of 2003. He was a wonderful child who brought joy into every life he touched. Even though he is gone, he is still touching lives around the world. In 2006 David Cornwaithe skateboarded across Australia, one of his charities was Lowe Syndrome, and in 2008 Nat Halliday and Adam Colton will be skating the length of New Zealand, they have also chosen Lowe Syndrome has a benificiary.
I hope to finish the book within in the next couple of months, I'll be making regular posts here updating you on my progress. In the meantime you can read the original journal I kept during the 2003 trek by clicking here.
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